About EGAPP: Survey

INTRODUCTORY NOTICE

You are invited to respond to a survey on the Evaluation of Genomic Applications in Practice and Prevention (EGAPP) Initiative. EGAPP is an initiative that has developed a systematic evidence-based process for assessing genetic tests and other applications of genomic technology that are in transition from research to practice. The EGAPP initiative is sponsored by the Centers for Disease Control and Prevention (CDC).

The survey at the link below is intended to determine your level of awareness and interest in EGAPP, and to get feedback from you on EGAPP-sponsored evidence reports and EGAPP Working Group recommendations on specific genetic tests that EGAPP has produced and made publicly available. The EGAPP Working Group is very interested in hearing from stakeholders so that they can assess the usefulness of the EGAPP process, as well as the quality and impact of the information developed on the genetic tests reviewed. Even if this is the first time you have heard about EGAPP, you can still provide valuable feedback by completing the survey.

Response is voluntary, but we hope that you will take the opportunity to complete the survey. On average, it will take about 10 minutes of your time. Click here to take the survey.

Comments on the quality and value of EGAPP products from your perspective will provide important insights to guide the development of this process. We know your time is valuable and thank you for completing this survey.

Survey responses cannot be traced to any information that identifies you, and all reporting will be done in summary form. More detailed privacy information is provided below.

This survey is being conducted on behalf of CDC by Judith L. Johnson, PhD, who is contracted through McKing Consulting, Inc. Questions about the survey may be directed to Dr. Johnson at (207 )784-0301 or [email protected].

Thank you again for your help. After completing the survey, you may learn more about the EGAPP project.

Privacy Information: Completion of this survey is voluntary. You do not have to answer every question and can skip those that you do not feel comfortable answering. You can stop answering the survey at any time. There are no foreseeable or expected risks for participation in this survey. Reports will not include any information that will make it possible to identify participants. Your individual responses will remain non-linkable to any information that identifies you and will be seen only by the evaluator of this project. All data will be reported out in the aggregate only. The mechanism for collecting survey information is Survey Monkey, a secure web site that meets the Safe Harbor and EU Data Protection Requirements. Data are collected and stored, but are only available to Dr. Johnson. All information collected is maintained in a secure manner. There are no plans to share this information with any third parties.

Links to organizations are provided solely as a service to our users. These links do not constitute an endorsement of these organizations or their programs by EGAPP, and none should be inferred. EGAPP is not responsible for the content of the individual organization Web pages found at these links.

Page last updated: February 10, 2010
Page last reviewed: April 8, 2009
Content Source: EGAPP Team