Resources: Links

 

Resources: Links

 

Quick links to categories below:

 

 

Systematic, Evidence-Based Review of Genetic Tests

  • U.S. Preventive Services Task Force external link
    An independent panel of experts in primary care and prevention that systematically reviews the evidence of effectiveness and develops recommendations for clinical preventive services.

 

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Genetic Testing Regulation and Policy

 

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Genetic Testing Guidelines

 

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Genetic Counseling Services

  • National Society of Genetic Counselors external link
    Professional organization web site includes consumer-oriented FAQs about genetic counseling, a “Find a Counselor” search function, and a fact sheet entitled “Five Questions to Ask Before Considering Genetic Testing”.

 

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Patient Advocacy

  • Genetic Alliance external link
    A coalition of hundreds of genetic advocacy organizations; web site offers information about genetic conditions and numerous educational and other resources.
  • National Health Council external link
    The National Health Council promotes the health of all people, especially those with chronic disease and supports and advocates on behalf of the voluntary health movement.

 

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Professional Organizations Related to Genetic Testing

 

  • American Clinical Laboratory Association external link
    The clinical laboratory industry’s leading advocate providing effective communication with Congress, regulatory bodies, other health care organizations and the public.
  • American College of Medical Genetics external link
    Provides education, resources and a voice for the medical genetics profession. To make genetic services available to and improve the health of the public, the ACMG promotes the development and implementation of methods to diagnose, treat and prevent genetic diseases.
  • American Society of Clinical Oncology external link
    Professional organization committed to advancing the education of oncologists, to advocating for policies that provide access to high-quality cancer care, and to supporting the clinical trials system and the need for increased clinical and translational research.
  • Association for Molecular Pathology external link
    A not-for-profit scientific society dedicated to the advancement, practice, and science of clinical molecular laboratory medicine and translational research based on the applications of genomics and proteomics.
  • College of American Pathologists external link
    The leading organization of board-certified pathologists, serves patients, pathologists, and the public by fostering and advocating excellence in the practice of pathology and laboratory medicine.
  • Genetic Alliance external link
    A coalition of hundreds of genetic advocacy organizations; web site offers information about genetic conditions and numerous educational and other resources.
  • National Comprehensive Cancer Network external link
    An alliance of 21 of the world’s leading cancer centers, who working together to develop treatment guidelines for most cancers, and dedicated to research that improves the quality, effectiveness, and efficiency of cancer care.

 

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Educational Resources

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Links to organizations are provided solely as a service to our users. These links do not constitute an endorsement of these organizations or their programs by EGAPP, and none should be inferred. EGAPP is not responsible for the content of the individual organization Web pages found at these links.

 

Page last updated: December 15, 2014
Page last reviewed: December 15, 2014
Content Source: OPHG Staff